Current estimates from the Centers for Disease Control and Prevention (CDC) of the number of people in the United States with chronic fatigue syndrome (CFS) increased from about 20,000 to as many as four million within a ten-year period. If this were true, we would be amidst an epidemic of unprecedented proportions. I believe that these increases in prevalence rates can be explained by unreliable case definitions.
Alcohol and drug abuse costs Americans approximately $428 billion annually. Despite this enormous cost—which, we must remember, is just the economic face of a community, family, and individually life-shattering problem—the vast majority of those with an alcohol or substance use problem do not receive treatment, and even fewer are likely to achieve long-term sobriety.
With rising health care expenses, we are all trying to solve the paradoxical dilemma of finding ways to develop better, more comprehensive health care systems at an affordable cost. To be successful, we need to tackle one of the most expensive health problems we face, alcohol and drug abuse, which costs us approximately $428 billion annually. Comparatively, the expenses of health care services, medications, and lost productivity for heart disease costs $316 billion per year.
People don’t exist as isolated entities, and social programs, movements, or data analytic methods that assume they do are not aligned with reality—and may be doomed to fail. We all know that providing therapy or tutoring to a child may be less effective than hoped if the child’s parents, peers, school, and neighborhood are not also operating in a way that’s conducive to the child’s growth and well-being.
Is it possible that a disease as impairing as Type II diabetes mellitus, congestive heart failure, Multiple Sclerosis, and end-stage renal disease could be repeatedly belittled and delegitimized by scientists and health care professionals? Tragically, this is the case for a devastating illness affecting over one million Americans, and these patients have been deprived of their basic rights to respect, appropriate diagnosis, and humane treatment.
The Institute of Medicine (IOM) recently released their report regarding a new name (i.e., systemic exertion intolerance disease) and case definition for chronic fatigue syndrome (CFS). In brief, the IOM proposed that at least four symptoms needed to be present to be included in this new case definition […]
On 10 February 2015, the long awaited report from the Institute of Medicine (IOM) was released regarding a new name — Systemic Exertion Intolerance Disease — and case definition for chronic fatigue syndrome (CFS). Because I was quoted regarding this report in a New York Times article, in part due to having worked on these issues for many years, hundreds of patients contacted me over the next few days.
I am sure that there are some who still proclaim that psychology’s greatest achievement is buried somewhere in Sigmund Freud’s psychoanalytic papers, whereas others will reject the focus on early childhood memories in favor of present day Skinnerian contingencies of prediction and control.
By Leonard A. Jason
Names of diseases have never required scientific accuracy (e.g. malaria means bad air, lyme is a town, and ebola is a river). But some disease names are offensive, victim-blaming, and stigmatizing. Multiple sclerosis was once called hysterical paralysis when people believed that this disease was caused by stress linked with oedipal fixations.