Comments on: Parkinson’s Disease and Hallucinations http://blog.oup.com/2009/03/parkinsons_hallucinations/ Academic insights for the thinking world. Wed, 19 Jun 2013 15:22:49 +0000 hourly 1 http://wordpress.org/?v=3.4.2 By: steve massey http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-239540 steve massey Thu, 24 Nov 2011 14:40:41 +0000 http://blog.oup.com/?p=3732#comment-239540 my father is 78 and has had PD for about 10 years he has has hallucinations for about the last 5 years which started as incects and flies and have now progressed to evil looking people who he claims eat human flesh? at one stage he was taken into hospital because he was convinced that they were comming out of the walls and was so frightened he managed to walk almost a mile to the policve station to ask for help. He cant manage more than a dozen or more steps normally. Whilst he was in hospital they adjusted his drugs and for a short time he seems to be less bothered and saw the images less. He has now moved into extra care accomodation and has assistance with his drugs from carers but in the last few weeks has started seeing people in his room? its all a part of the condition we are told and there is nothing that can be done so we have to help him live with it? distracting him sometimes helps and we try to take him out as much as possible but as his condition develops this is difficult. i jusy hope it is not heredatary because i would rather go in my sleep than cope with what has happened to him. he has lost his independance and still thinks he is much younger man and is finding life frustrating. he is taking Stalevo. my father is 78 and has had PD for about 10 years he has has hallucinations for about the last 5 years which started as incects and flies and have now progressed to evil looking people who he claims eat human flesh? at one stage he was taken into hospital because he was convinced that they were comming out of the walls and was so frightened he managed to walk almost a mile to the policve station to ask for help. He cant manage more than a dozen or more steps normally. Whilst he was in hospital they adjusted his drugs and for a short time he seems to be less bothered and saw the images less.

He has now moved into extra care accomodation and has assistance with his drugs from carers but in the last few weeks has started seeing people in his room? its all a part of the condition we are told and there is nothing that can be done so we have to help him live with it? distracting him sometimes helps and we try to take him out as much as possible but as his condition develops this is difficult. i jusy hope it is not heredatary because i would rather go in my sleep than cope with what has happened to him. he has lost his independance and still thinks he is much younger man and is finding life frustrating. he is taking Stalevo.

]]> By: Shiley http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-214936 Shiley Mon, 04 Apr 2011 00:58:46 +0000 http://blog.oup.com/?p=3732#comment-214936 John, which medication are you on for the PD? Is it Sinimet? My husband has had PD since 1993. He was taking Stalevo and did not have th hallicinations until we changed to the Sinimet. They did not start immediately, now they are very annoying to me. John, which medication are you on for the PD? Is it Sinimet? My husband has had PD since 1993. He was taking Stalevo and did not have th hallicinations until we changed to the Sinimet. They did not start immediately, now they are very annoying to me.

]]> By: Chrissy http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-172984 Chrissy Thu, 09 Sep 2010 23:25:49 +0000 http://blog.oup.com/?p=3732#comment-172984 My 70 year old mother was diagnosed with PD in 1995. Over the last couple of years she's reported seeing flashes or illusions of people in her peripheral vision. About a year or so ago she had a scary incident of hallicinating and was told to stop taking one of her meds. This did the trick until recently when she began seeing people inside/outside of her house on a regular basis. Today one of her "friends", as we now jokingly refer to them as, was with her all day. She said this was the first time she was actually scared. She describes the people she sees very vividly and that they are "ugly" and never speak, but just stare at her. She is very candid about these experiences and, most painfully, she is totally lucid and knows what she sees is not real. I am fearful that things are progressing quickly to a level that will not/cannot be remedied. Am I right? Don't know what to do to help. Thanks. My 70 year old mother was diagnosed with PD in 1995. Over the last couple of years she’s reported seeing flashes or illusions of people in her peripheral vision. About a year or so ago she had a scary incident of hallicinating and was told to stop taking one of her meds. This did the trick until recently when she began seeing people inside/outside of her house on a regular basis. Today one of her “friends”, as we now jokingly refer to them as, was with her all day. She said this was the first time she was actually scared. She describes the people she sees very vividly and that they are “ugly” and never speak, but just stare at her. She is very candid about these experiences and, most painfully, she is totally lucid and knows what she sees is not real. I am fearful that things are progressing quickly to a level that will not/cannot be remedied. Am I right? Don’t know what to do to help. Thanks.

]]> By: Marines http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-172487 Marines Mon, 06 Sep 2010 20:18:34 +0000 http://blog.oup.com/?p=3732#comment-172487 John, did you mean eliminating the levodopa prescribed at bedtime? how are you doing 8 months later? John, did you mean eliminating the levodopa prescribed at bedtime? how are you doing 8 months later?

]]> By: Lorna http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-164700 Lorna Tue, 22 Jun 2010 19:47:23 +0000 http://blog.oup.com/?p=3732#comment-164700 My 87-year-old father has Parkinsons and has recently been admitted to a nursing home. He is being treated with carbidopa. Although he was never paranoid, combative or aggressive at home, since admittance to the nursing home, he is all three. It puzzles the family, and the staff doesn't quite know what is triggering this either. Is this likely the disease process? The sudden change in environment (he had been at his home for the past 20 years), or a change in the dosage? My 87-year-old father has Parkinsons and has
recently been admitted to a nursing home. He is being treated with carbidopa. Although he was never paranoid, combative or aggressive at home, since admittance to the nursing home, he is all three. It puzzles the family, and the staff doesn’t quite know what is triggering this either. Is this likely the disease process? The sudden change in environment (he had been at his home for the past 20 years), or a change in the dosage?

]]> By: JOHN MELLA http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-156499 JOHN MELLA Sun, 31 Jan 2010 04:44:31 +0000 http://blog.oup.com/?p=3732#comment-156499 PD diagnnosis since 2004. Beeen taking levo-dopa since. Recently, strong hallucinations. Simply elikminating the one pill prescribed at bedtime completly banished the halucinations. (I take 2 on rising, and 2 at 2 pm.) PD diagnnosis since 2004. Beeen taking levo-dopa since. Recently, strong hallucinations. Simply elikminating the one pill prescribed at bedtime completly banished the halucinations. (I take 2 on rising, and 2 at 2 pm.)

]]> By: Peter Draper http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-156390 Peter Draper Mon, 25 Jan 2010 05:02:56 +0000 http://blog.oup.com/?p=3732#comment-156390 I was diagnosed 2005, and on 1gm levodopa (madopar - 200mg x 5) during the day. At night I often - while awake - hear a rustling and then feel an animal (maybe a cat - we have cats) crawling across the bed. It's a bit scary. Turning on the lights makes it stop. My neurologist has prescribed Seroquel 25 mg, but it makes me so groggy that although I don't wake up, my next day is like being in a sleep vice. no good. Better to put up with the hallucinations! I was diagnosed 2005, and on 1gm levodopa (madopar – 200mg x 5) during the day. At night I often – while awake – hear a rustling and then feel an animal (maybe a cat – we have cats) crawling across the bed. It’s a bit scary. Turning on the lights makes it stop. My neurologist has prescribed Seroquel 25 mg, but it makes me so groggy that although I don’t wake up, my next day is like being in a sleep vice. no good. Better to put up with the hallucinations!

]]> By: isobel kerr http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-153940 isobel kerr Mon, 19 Oct 2009 17:25:00 +0000 http://blog.oup.com/?p=3732#comment-153940 my mum has parkinsons and has been seeing dead relatives an d small dogs and children my mum has parkinsons and has been seeing dead relatives an d small dogs and children

]]> By: Searching the Net for Parkinson’s Blogs | DEEP BRAIN DIARY http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-152501 Searching the Net for Parkinson’s Blogs | DEEP BRAIN DIARY Sun, 28 Jun 2009 15:12:04 +0000 http://blog.oup.com/?p=3732#comment-152501 [...] Parkinson’s Disease and Hallucinations (oup.com) Sphere: Related ContentAKPC_IDS += "3416,";Popularity: unranked [?] Tagged as: Colorado, Conditions and Diseases, Google, Health, parkinsons disease, Texas, Virginia [...] [...] Parkinson’s Disease and Hallucinations (oup.com) Sphere: Related ContentAKPC_IDS += “3416,”;Popularity: unranked [?] Tagged as: Colorado, Conditions and Diseases, Google, Health, parkinsons disease, Texas, Virginia [...]

]]> By: Frances Calhoun http://blog.oup.com/2009/03/parkinsons_hallucinations/#comment-150487 Frances Calhoun Sat, 09 May 2009 01:30:37 +0000 http://blog.oup.com/?p=3732#comment-150487 my husband has been having hallucinations and he has parkinson's disease. Is there a medication that he can take to control these hullucinations ? If you have experienced these please email me. Thanks my husband has been having hallucinations and he has parkinson’s disease. Is there a medication that he can take to control these hullucinations ? If you have experienced these please email me.

Thanks

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